Thursday, September 22, 2022

This Time It’s Personal



Every September 22nd, CML patients across the globe unite on World CML Day to raise awareness about CML.

9/22 represents the genetic change of chromosomes 9 and 22 that is the cause of Chronic Myeloid Leukemia.

However, there is still a serious lack of standard treatments and monitoring tools for CML patients in many countries over the world.

Access to basic medicines and diagnostic, treatment according to expert recommendations, accurate monitoring tools, effective side effects management, and the right information for patients and caregivers remain as huge challenges for many CML patients worldwide.

You can learn more about CML by visiting


I struggled for about six weeks with an infection that just wouldn’t go away, even after a few rounds of antibiotics, high fevers that had me bed ridden for days, pain that radiated down my arm so badly that I couldn’t even lift it high enough to grab a coffee mug out of the cupboard, shortness of breath, and extreme fatigue. After all that, Jay insisted I follow up with my family doctor instead of going back to the local clinic. It was then that blood work was taken, and things would never be the same. 

I was diagnosed with CML in February 2017.

I was told that if you were going to get cancer, this was the best one to get. It has been called the “lucky leukemia.” I don’t feel lucky and for me it has not been an easy road, I struggle daily………physically, emotionally, and mentally.

I do not write this or any other posts about CML looking for sympathy or attention, I do it to bring awareness. CML is a rare cancer of the blood and after my diagnosis it was a challenge to find support. My experience was kind of like, “here is a pamphlet and good luck to you!” 

Being told you have cancer is shocking enough, no one should ever feel alone during such an emotional time.  By sharing my story, my hope is that it will let other people know they are not alone as they face their own cancer journey.

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